Apparently, a new trend in “preventing deformity” is to stop the natural growth of children with developmental disabilities. It’s been hit in a few Catholic blogs already.
Of course, one of my major objectives is to make the point that disabled people should be free to live as “normally” as possible, even if we require more work to get there.
It’s also to argue that we can’t “prevent” bad things from happening. Life stinks. There are certain things we can do in certain situations to prevent problems, but if we always live our lives “preventing”, that leads to misery. I see it so often. I am so sick of people telling me, “You can’t do that because of X” (whether X is financial, physical, whatever).
Some risks are worth taking in order to have a full life.
A lot of Marfan parents use growth-retarding hormones, particularly on girls, to at least save them some of the social stigma of being too tall, and hopefully to prevent some of the manifestations of Marfan from being as severe. Even that has struck me as far too Frankensteinish.
Lastly, our society increasingly sees children as toys. I see it in how my children are treated by the extended family on both sides. Buy them lots of stuff to see them open their presents. Beg for them to visit “so we can see the kids.” Then when they actually act like kids, throw a fit that they’re not behaving properly. Then complain that they have too many toys lying around. Do whatever you want to in their presence without thought to how it might effect them emotionally or spiritually.